Tag Archives: Fundraising

Three years later!

Hello out there! My mom, Grammiex10, keeps reminding me that people still read this and I should post an update, but we have been busy and this blog has fallen by the wayside. If you’ve been waiting for an update, I’m sorry! But, as we all know, no news is good news!

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The three year anniversary of Emily’s diagnosis came and went without fanfare. I knew it was the 8th, but I didn’t feel any emotion really. The day that was the most emotional was actually the day our Classical Conversations group went roller skating for Valentine’s Day, since that was the event we went to right before taking Ems to the emergency room. But this year Emily strapped on her roller skates and skated to her heart’s content! Then she sat on the floor with some friends and proceeded to stuff her face with valentine candy 😀

She’ll be five in just two months! And her growth spurt has continued to take off. She has just about caught up to the average height and weight of kids her age! She’s louder than the average kid her age … which only shows that Stitch is 100% back!!

Each month she sees her oncology team for a physical and lab work. Her blood numbers are still looking great! Hemoglobin, platelets, white blood cells, and her ANC are all in the healthy range. Her IgG is still lower than Dr. Ducore would like during the cold and flu season, so she’s still receiving IVIG once a month, and so far she’s been really healthy. The only bummer is that she gets a headache and neck pain for 2-3 days after, but she’s still a trooper and deals with it without much complaint. She just received her IVIG on Thursday, so today she took it easy, rested most of the day on the couch with a cold cloth, and took a couple naps. She’ll be good as new tomorrow.

Waiting for her IVIG on Thursday

Waiting for her IVIG on Thursday

If you can believe it, we have an appointment for a hair cut in a couple weeks! Her hair is getting longer, but it’s still somewhat uneven and thin, and her bangs are constantly in her eyes, so we’re going to go for it! Hopefully my hairdresser can even it out while still giving Emily the impression she has “Rapunzel hair” 😉 I’ve been showing Emily pictures of cute little bobs, but we’ll see what works when we get there. I will post photos!

French braids after her bath!

French braids after her bath!

Last week we were able to help bring Build-A-Bear to the children’s hospital again!! Jason, along with a co-chair from CMN, and a sponsor from a local Chick–Fil-A, raised enough funds for all 71 admitted patients to build their own bears. Because Jason had to work, I got to go this year and help the Build-A-Bear staff and the Child Life staff deliver stuffed animals and hearts to the children. Each child went through the heart ceremony to bring their heart to life, then the med surge students sewed the animals up! It was awesome! By far my favorite event for the hospital.

Next week, on Tuesday, March 3, IHOP is hosting its annual National Pancake Day for the children’s hospitals. Go into any local IHOP and order a shortstack of buttermilk pancakes for free! But don’t forget to leave a donation that will go directly to your local children’s hospital! Or you can drive by the hospital on Monday, where they will have a mobile pancake station set up! Get your pancakes and make a donation there. We were so blessed by this event shortly after Emily was diagnosed three years ago, and we’re excited about it this year too! We even had the opportunity to talk with our local IHOP stores to thank them for what they do and share Emily’s story. We have seriously loved being able to meet and thank all the people who support our hospital!

Another annual fundraiser for the hospital is the tattoo-a-thon held by Wild Bill’s tattoo shop every February. Last year I got cold feet, but this year Jason and I took Emily, and I may have supported the cause with a tattoo of my own! Wild Bill has raised over $150,000 for the hospital over the years, plus another $18,000 this year. They even have a room in the PICU named for them.

That’s all for now! I’ll update again soon.

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Costco and the Children’s Miracle Network

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We’ve mentioned our involvement with CMN (over and over  and over  and over  and over  and over again), and also how we’ve been able to share our story with Costco, one of CMN’s greatest supporters. We love the people of Costco. They are kind, compassionate, generous, and supportive, and they’ve showered us with their affection more than once in the last couple of years. In March of this year the kids and I had the opportunity to share our story with the regional Costco managers again, and afterward, some of them came up to thank us. One of them was a cancer survivor and Costco Depot manager, who invited us to share Emily’s story and Beads of Courage at their 2nd annual CMN/Costco Golf Tournament. Of course, we were delighted to be involved!

So on Saturday, May 3rd, we headed down to Lockeford for the tournament, which was hosted by the Costco Depot and attended by Costco employees and vendors. Every single person we met was smiling and laughing and happy to see us.

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After everyone was registered, they all gathered for a group photo, inviting us to join. Then they introduced us and we briefly shared our story. We brought Emily’s Beads of Courage, and the kids held them up as I talked. Mostly we wanted to thank them for their commitment to CMN. Costco has been a HUGE supporter of CMN for many years -you’re probably seeing the yellow and red CMN balloons at your local Costco now (May is their big drive month). However, in addition to the balloon sales at their warehouses, the Depot began this annual golf tournament -all on their own -and last year they raised $34,000. I haven’t heard the numbers for this year, but I’m sure it was more.

After we spoke, they surprised us by bringing out a birthday cake for Emily while they sang Happy Birthday. They also brought out goody bags for each of the children -and you can imagine how big and full the goody bags were, being from Costco! All the kids also received their very own Costco Employee lanyards! Those were a hit 🙂 The rest of the day was spent enjoying the sweet people, good food, and golf. We all had a blast and are so thankful we got to spend time with such amazing, warmhearted people.

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One of the raffle prize tables.

One of the raffle prize tables.

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Yum!

Yum!

CMN Director, Jacqueline Mills, is the most amazing woman.

CMN Director, Jacqueline Mills, is the most amazing woman.

Sneaking in a snooze

Sneaking in a snooze

And the winners are in!

1959515_615526985209992_6125541125100722942_n Our time with the LLS Man/Woman/Students of the Year Campaign has come to an end, the money has been counted, and the winners have been announced. Last Saturday, May 10th, was the night of the Grand Finale Gala, and it felt like the whole city turned out to celebrate. I heard there were around 700 attendees.10368224_615564545206236_7434220702855960907_n1557570_615539951875362_2526233880300163696_n The Hyatt was elegantly decorated, 10172745_615518558544168_4275135495618750426_n and the silent auction items were lined up with care. 10292496_615527121876645_7805885312668070059_n10300024_615527195209971_6559067525339909611_n Everyone got the Red Carpet treatment, 10308344_615534171875940_561666904001182502_n even us. 10365905_615534038542620_9045997013272446953_n Our favorite people, the Man/Woman/Student Candidates were there.

Bernice Craeger

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Lauren Montee, Austin D’Souza, Alex Stamas, Jason Silva, CK Hicks, Brendan MacDonald, Julianna Hess, Megan Hester McCullough, Dulcy Wilson, Roland Guillen

Jennifer Pear, Campaign Director, with Jason Silva, MOTY Candidate

Jennifer Pear, Campaign Director, with Jason Silva, MOTY Candidate

Kim & Doug Brauner and Jim Anderson

Kim & Doug Brauner and Jim Anderson

Alex Stamas with mentor and 2013 Woman of the Year, Gloria Torres

Alex Stamas with mentor and 2013 Woman of the Year, Gloria Torres

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Roland Guillen, Russell Patty, and Jason Heathers

Okay, there are more candidates, but I’ll have to search for their photos tomorrow! It was a splendid evening. We met some amazing people and thoroughly enjoyed the whole event. Well, most of us did. IMG_20140510_182345816

Yes, that face means she was done!

Yes, that face means she was done!

By the time the event began, Emily was already tired and cranky. Waiting a couple hours for the silent auction to end and the dinner doors to open wasn’t what she had in mind. Thankfully we had back-up support to keep her entertained.

My mom and dad

My mom and dad

Jason's mom

Jason’s mom

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Jason's dad

Jason’s dad

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Jason's brother Eric, and his wife Marni

Jason’s brother Eric, and his wife Marni

Jason's brother Aaron, and his wife Gina

Jason’s brother Aaron, and his wife Gina

Plus, Julianna Hess and Megan Hester McCullough -who played Funny Bunny and Pearl the Squirrel in the local college theater play we attended a few weeks ago, were sweet enough to reenact their roles throughout the evening. Anytime Emily felt tired, she would say, “Oh! Funny Bunny said she would tell me jokes!” and we’d hurry over to their table for some comic relief.

The evening was hosted by “Rob On the Road’s” Rob Stewart10313181_615572251872132_5905090627735061342_n   And we enjoyed live music by Mary Joyner and Jeremy Briggs10177884_615549695207721_2629689024393343566_n1012589_615544401874917_2594233244092273947_n

When all was said and done, the candidates raised almost $500,000 for  LLS -a record-breaking amount! 

Now for the winners! First, the Bobby Dean award was presented to Roland Guillen, for his exemplary effort in raising awareness and the spirit he displayed throughout the campaign.

In the Students category, first runners up were CK Hicks and Brendan MacDonald, and the winners were Lauren Montee and Austin D’Souza. Both of these student candidate pairs raised more than $20,000 each and were awarded scholarships.

In the Woman category, first runner up was Bernice Craeger, and the winner was Dulcy Wilson.

And in the Man category, 2nd runner up was Jim Anderson, 1st runner up was Roland Guillen, and the winner was Alex Stamas. All three of these candidates raised more than $50,000 each and had the privilege of naming a research grant in someone’s honor (Jim named his in memory of his dad and in honor of Emily!).

Man, Woman, and Student Winners!

Man, Woman, and Student Winners!

Now I’m just going to shower you with random photos from throughout the night. Plus, you can go to the following links to see even more photos!

Sacramento Magazine and Man and Woman of the Year Facebook (this one has multiple albums with hundreds of photos)

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Boy of the Year, Garrett Heisinger and mom Kelly

Boy of the Year, Garrett Heisinger and mom Kelly

 

 

This young lady was the very first Sacramento Girl of the Year 17 years ago.

This young lady was the very first Sacramento Girl of the Year 17 years ago.

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Aunt Marni taught Emily how to sign her autograph, so she proceeded to autograph her picture in everyone's pamphlets.

Aunt Marni taught Emily how to sign her autograph, so she proceeded to autograph her picture in everyone’s pamphlets.

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Ethan

Ethan

William

William

Adam

Adam

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Dancing with Daddy

Dancing with Daddy

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Congratulating Man of the Year Winner Alex Stamas

Congratulating Man of the Year Winner Alex Stamas

Emily with Jim

Emily with Jim

Earlier in the day, the girls and I were treated to hair an makeup at the hotel. We all had fun getting glammed up!

Sophia getting her hair done

Sophia getting her hair done

The instant they draped the cloth around Emily's neck, she began giggling.

The instant they draped the cloth around Emily’s neck, she began giggling.

Pretty!

Pretty!

They even got gold glitter sprayed in their hair!

They even got gold glitter sprayed in their hair!

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All dolled up and ready for a party!

All dolled up and ready for a party!

And that’s all I have! We are so honored and grateful to have been a part of something so much bigger than ourselves. God has truly blessed us throughout this journey, and we’re grateful for every person we meet and every opportunity we have to give back. Thank you so very much for supporting us!

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LLS campaign is almost over!

Whew! We have had a busy 9 1/2 weeks. When we signed on to help with the LLS Man/Woman/Students of the Year campaign, we knew we were committing to a busy Spring schedule -mostly because we also have two boys playing baseball, one playing golf, and Sophia in American Heritage Girls, in addition to Emily’s ongoing treatment and our involvement with the Children’s Miracle Network. But we figure it’s about the same as what most families are committed to on a regular basis!! And it’s NOTHING compared to our schedule two years ago, when Emily was first diagnosed. So it’s been busy, but in a good way, and we’re so happy to help. Plus, we have met some amazing people and been able to participate in some really cool events!

The LLS campaign ends this week! We get to celebrate at a fancy-schmancy gala on Saturday where we’ll find out how much money was raised and who the winners are! The girls and I are really excited to get all dolled up, but the boys don’t seem to be as happy about suits and ties. They’re lucky I couldn’t find tuxedos!

So here’s a brief rundown of some of the events we’ve been a part of since I last updated:

On Sunday April 6th we got to attend the SacTown Credit Union 10 Miler. This is an annual race sponsored by the Credit Unions that benefits the Children’s Miracle Network. One of our Woman of the Year candidates, Bernice Creager, set up her LLS booth and asked for donations and registrants for the Bone Marrow Registry.

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Jason & Emily in front of Bernice's booth

Jason & Emily in front of Bernice’s booth

Emily w/Woman of the Year candidate Bernice Creager

Emily w/Woman of the Year candidate Bernice Creager

That same day the kids and I were invited to attend the local city college theater to watch two of our student candidates in a play of Goldilocks! It was such a fun thing to attend, and Emily can’t stop talking about it.

Emily & Sophia with Students of the Year candidates Julianna Hess & Megan Hester-McCullough (plus a little mouse)

Emily & Sophia with Students of the Year candidates Julianna Hess & Megan Hester-McCullough (plus a little mouse)

The following Sunday we attended  Man of the Year candidate, Roland Guillen’s Foot Golf Tournament. He is running for his friend Mike, who was diagnosed with lymphoma last Fall. We got to speak, along with Mike. The Boy of the Year, Garrett, got to play in the tournament with his brother and sister.

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On Thursday the 24th we were invited to see David Garibaldi live! A former candidate, Abe Snobar, held this event and invited all the candidates plus Emily and Garrett. Wow, it was COOL! At the end of the show all four paintings David painted were auctioned off, and all the proceeds went to the LLS campaign.

On stage with Abe Snobar & our MC for the night

On stage with Abe Snobar & our MC for the night

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On Saturday the 26th we attended Students of the Year, CK Hicks’ & Brendan McDonald’s Pasta Feed. Emily had fun dancing 🙂

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The students showed Emily’s and Garrett’s videos, then Garrett’s grandma and I spoke to the attendees. We are so thankful for people like this that give of their time and money -because without them, we wouldn’t have the research that’s given Garrett and Emily a fighting chance.

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There have been many, many other fundraiser events over the past 9 1/2 weeks, and I know all the candidates are looking forward to this weekend -when it’s all over!

More LLS Girl of the Year Events

Emily on the treadmill

Emily on the treadmill

This is actually from the very first event we went to, but I couldn’t find the pictures yesterday. One of the candidates, Jim Anderson, ran 50 miles in 12 hours on a treadmill to raise money and awareness for LLS. 50 miles! Emily “helped” by hopping on for about ten seconds. She really hasn’t met a stranger yet, but she seemed to take a real shining to Jim when she first met him a couple months ago.

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Emily and candidate Jim Anderson

 

On Sunday we attended candidate Doug Brauner’s (the Car Czar) Strike Out Cancer event. The kids were super excited about an afternoon of bowling, though Emily was most excited about the SHOES!

Bowling shoes!!

Bowling shoes!!

Emily & Jennifer Pear (AKA Super Woman!)

Emily & Jennifer Pear (AKA Campaign Manager Extraordinaire!)

The boys took turns helping Emily bowl. Surprisingly, she and Sophia won our game.

The boys took turns helping Emily bowl. Surprisingly, she and Sophia won our game.

Boy of the Year Garrett, candidate Doug Brauner, and Emily

Boy of the Year Garrett, candidate Doug Brauner, and Emily

I was excited to meet Jeremy Briggs, a local contestant on this season of The Voice!

I was excited to meet Jeremy Briggs, a local contestant on this season of The Voice!

 

LLS Girl of the Year

Emily's cousins discovered a poster with her picture on it at their neighborhood coffee shop!

Emily’s cousins discovered a poster with her picture on it at their neighborhood coffee shop!

You’ve probably heard of Team in Training and Light the Night, right? Team in Training trains people to run marathons and helps them fund raise (like the Nike Half that my sister Jenn ran in in San Francisco in October 2012), and Light the Night is a really neat fundraiser/walk held each year where people walk with different color balloons based on their journey with cancer (we participated in this one). Both of these events are fundraisers for the Leukemia and Lymphoma Society (LLS). LLS has a moto: Someday is today. And their mission is to raise awareness and money to help find the cure for blood cancers.

The third big fundraiser that LLS runs each year is called the Man & Woman (& Students!) of the Year Campaign. Men and women from the community race against each other in a competition to raise the most money for LLS. Each candidate is nominated by the nominating committee, and they commit to ten weeks of super-intense fundraising. At the end of the ten week period a large gala is held, along with a silent and live auction, and the winner of each category is announced. Students are also allowed to campaign, and they run in teams of two.

Most of the candidates have a connection to blood cancer -either they or someone they love has gone through it. But each year a Boy and Girl of the Year are chosen to serve as motivation and inspiration throughout the campaign. They are local blood cancer survivors, and they join the fundraising efforts to share their stories and help the candidates in their endeavors. The Boy & Girl do not have to fund raise themselves.

This year Emily was nominated as the Girl of the Year, and we have been so blessed to meet and help the candidates with their events. Over and over gain -since Emily was diagnosed -I have been blown away by the generosity and care that people have toward others. These men, women, and students spend a huge amount of time on their campaigns -in addition to their regular jobs/studies. They each have a team behind them, but I still don’t know how they do it. It is a huge commitment.

To help with the campaigns (though, really, we aren’t doing much), we filmed a video of Emily’s story and we attend any of the fundraising events that we are invited to. We’ve shared her story with the candidates, and we’re rooting for them! In the end, regardless of who wins, all the money is going to the LLS, so we’re all winners (cliche, I know).

Here is the video:

And here are pictures from some of the events we’ve attended so far:

Emily with candidate Jason Silva at his Fishing Derby & BBQ

Emily with candidate Jason Silva at his Fishing Derby & BBQ

Jason Silva's poster

Jason Silva’s poster

With candidates Ronnie Cobb and Nikki Hurst at their Gospel Choir event.

With candidates Ronnie Cobb and Nikki Hurst at their Gospel Choir event.

With Jennifer Pear, the LLS Campaign Director.

With Jennifer Pear, the LLS Campaign Director.

The Boy of the Year is a sweet, sweet 11 year old who just entered his Maintenance Phase of treatment last November. Out of all the boys and girls in the Sacramento area who could have been chosen for these roles, both Garrett and Emily are being treated at UCD by Dr. Ducore -it’s a fun coincidence.

We’re already halfway through the ten week campaign, but I’ll update with photos as we can.

 

 

More Beads of Courage

It’s been over a year since we’ve shared Emily’s Beads of Courage, so here they are!

Beads of Courage

Beads of Courage

These are current as of November 2013, so we’re missing about four months worth. We have close to 800. I can’t tell you how much Emily loves these! She often pulls them out and (ahem) “organizes” them. I’ve tried to keep them in the order of events as they happened, but I somewhat gave up toward the end so she can play with them 🙂

A year ago Emily and I were able to travel to the Northern California Costco Regional Managers meeting to share her story. They do their big fundraiser for the Children’s Miracle Network every May, so we got to help pump the managers up, so they could in turn pump their employees up, so they could in turn sell more of those red and yellow CMN balloons 🙂 All of the proceeds of those balloon sales go to CMN and (here in our area) to the UC Davis Children’s Hospital. The funds pay for things the hospital can’t afford, such as specialized equipment, research, the Child Life program, and the Beads of Courage (plus more). Just yesterday, all five kids and I got to speak to the same Costco managers and share an update. They were so sweet to have us, and we were so honored to be able to help give back. We brought her beads, so they could see how important their efforts are to families like ours.

(We’ve also been lucky enough to share our story with Sam’s Club and Walmart!)

I forgot to include something for a size reference in the photo above, but those beads stretch clear across a large conference room. I am so thankful for such a neat program available to Emily!

Build-A-Bear for the Kids!

It's Build-A-bear Day!!

It’s Build-A-Bear Day!!

We made it happen!! Thank you all SO, SO, SO much!! When we posted two weeks ago here , asking for help to get our Build-A-Bear idea back on its feet, you came through big time! In less than 24 hours we were 2/3 of the way to our goal, and within a week we had exceeded it!

So today, Friday Feb. 7, 2014 Jason and the Children’s Miracle Network, together with the manager and workers of our local Roseville Build-A-Bear store, are in the UC Davis Children’s Hospital Playroom putting together bears with the patients! Jason is posting pictures to his Facebook page, so I’m borrowing them and posting them here as they come in (all children shown have signed a consent).

This date was picked because February is Heart Month at the hospital, and the focus is on congenital heart disease and heart health. The B-A-B staff have set up shop in the playroom, and some of the Pediatric Heart Surgeons and Med Team have joined them to sew up the hearts. So fun!

Build-A-Bear staff

Build-A-Bear staff

Joy waiting to be spread!

Joy waiting to be spread!

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Hearts ready to go through the Heart Ceremony and be sewn into each animal.

Surgeon statioon set up!

Surgeon station set up!

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Med Students helped sew the hearts in

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I think this is good practice!

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Tucking her heart in

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So many choices!

Going through the Heart Ceremony

Going through the Heart Ceremony

Making a wish and kissing their hearts

Making a wish and kissing their hearts

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Even the kids who couldn't make it to the playroom got to participate.

Even the kids who couldn’t make it to the playroom got to participate.

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News crews showed up.

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Jason and Trisha with the Build-A-Bear team

Headed upstairs to the PICU!

Headed upstairs to the PICU!

Jason said the day went better than hoped and everyone was so pleased. He also said there were more than a few tears throughout the day, mostly from the parents who were so appreciative of the gesture. He had the chance to explain how the idea came about and how the funds were raised, and many of the parents asked him to tell all of you thank you! They were so touched.

The last thing I have to share is a video (shared with permission) of one PICU family going through the Heart Ceremony for their son, Roman, who could not do it himself.

**Thank you all SO much for helping us make this happen! I think this is my absolute favorite thing we’ve been a part of since Emily’s diagnosis two years ago.**

An article featured on the UCD website: http://www.ucdmc.ucdavis.edu/welcome/features/2013-2014/02/20140214_children_bears.html

Can you help a Pediatric Patient?

**UPDATED** We did it!

Do you remember this post, when Grammie shared that Jason and I got to help the Children’s Miracle Network wrap gifts at the local mall, and the Build-A-Bear store right across the way gave each of our children their own bear?

Build-A-Bear!

Build-A-Bear!

Well it was the first time I had ever been to Build-A-Bear and seen the process of building a bear, and I was moved to tears! The manager of the store led each of the kids through the steps of picking out an animal to stuff, picking out characteristics their animal would posses, and then adding the heart. When they added their hearts, the manager performed a ceremony for each one. She had them take their hearts and rub them on their backs while saying, “She’s(he’s) always got my back,” then they rubbed the hearts on their foreheads so their animal would be intelligent, jumped up and down with them so their animals would have health and energy, laughed with them so their animals would be happy and playful, rubbed them on their own hearts so their animal would be full of love, and finally they kissed the hearts so their animal would know how much they are loved. There were more things that I can’t remember, but I couldn’t hold back the tears! I thought it was the coolest thing! And right then I knew we had to make this happen for all the kids in the hospital.

So we asked the manager if it was even a feasible thing -to bring the process to the hospital -and she was as excited as we were! Jason jumped on the job right away and secured a sponsor. Partnering with the Child Life Program, we decided to bring Build-A-Bear to the hospital in February, because it’s Heart Disease Awareness Month. The sponsor agreed to donate enough money to provide a bear for each patient in the hospital on February 7th -that includes the General Peds Floor and the Peds ICU.

Build-A-Bear will bring a variety of partially-stuffed animals and accessories to the Playroom, and all the patients can pick one out and go through the process of building their own bear! Patients that can’t make it to the playroom will have the supplies and heart ceremony brought to them!

We have been so excited about this, but just today our sponsor pulled out. We could throw in the towel and give up, but we decided to turn to our friends for help. Build-A-Bear has given us a significant discount, but we still need to raise $1800 by Feb 2, 2014 to make this happen.

Jason set up a page through crowdtilt.com, to make it easy for anyone to donate. $30 will purchase one animal, but of course every little bit will help, even if it’s $1! Will you help us make this happen? If so, you can click the link below to go to the donate page. We’ll of course keep everyone updated as things progress! Thank you!

Sponsor a Build-A-Bear! 

Build-a-Bear for a Peds Patient!

Build-a-Bear for a Peds Patient!

This is what love is —-

This is what love is —

THIS is what love is —
Love is shelving your life – again – when your baby gets sick – again.  Love is dropping all of your “girls’ weekend” plans – while the Dads and boys are out-0f-town, camping – and taking your sick, baby girl back to the hospital when she starts running fevers. — Love is caressing your baby’s head to help calm her to sleep when her temp spikes to over 103 degrees.  — Love is feeling guilty – again – when everyone around you steps in to help, and feeling like you’re letting down your husband and other children.  — Love is releasing Emily – and all of this – to God.  Not so easy to do for a tired, concerned Momma.

Emily always wants to stay in the chair-bed with Momma, so Sophie made herself comfortable in the crib!

Emily is back in the hospital.  She started running temps again – 99’s and low 100’s.  The protocol is:  if Emily runs three temps that are 100 or higher, or one temp 101 or higher, Chrissie is to call the Oncologist, and Emily is usually admitted.  That is what happened yesterday.  Labs and cultures were drawn and an antibiotic was started – same scenario as last time.   Emily was very susceptible this week as her ANC/immune system count was only 80 on Thursday and her white blood cell count was 0.5.  Basically, she doesn’t have any immune system power to fight whatever virus or bacteria has attacked her body. Today, her ANC is 24.  If, as with the last time, the cultures come back negative for bacteria, we will have to assume it was a virus.  And there are plenty of them out there right now.

Yesterday evening – and again, in the middle of the night – Emily’s temp spiked  to over 103 degrees.  She was a sick, little girl.  The high temps hit her pretty quickly and the first time, she just laid down on the chair-bed in the room and pulled her blanket around her.  Today, her temp was down to 99’s – but had increased again to 101.4  after she woke up from an afternoon nap.  We shall have to see what happens tonight – please pray for her.

On another note,  Auntie Jennifer is continuing to train for the Nike Half Marathon for the Leukemia and Lymphoma Society – in Emily’s honor.  Jennifer raised enough money to have Emily’s name printed on all of the Central Valley Team In Training jerseys!  Thank you to everyone who donated towards that.

Also, in Emily’s honor, Jennifer made a tutu to wear to the Team In Training banquet, in honor of Emily, who was the tutu Princess during her earlier hospitalizations!  Please pray for Jennifer, her friend, Heather, and Marissa Tingus, Emily’s cousin-in-law, who are all going to be running this half marathon on Sunday, Oct. 14th.

Auntie Jennifer – honoring Emily’s spirit! And showing that she shares it, too!