Well, we still don’t have any “this is absolutely what happened” answers but Emily is doing well today and can very likely – but not for sure yet(!) – go home late this afternoon. Her first blood cultures have come back negative and if the second one is also
negative today, home may be a reality tonight!
Emily’s Resident MD this morning said again that they think she had a reaction to the IV Ig infusion on Thursday, rather than sepsis, because if she had been septic, she probably wouldn’t have responded to treatment so quickly. When she’s been septic in the past, she’s been very sick for days. This time her symptoms improved within 24 hours and she never needed pressors to get her blood pressure back up. As for the odd finding in her lungs on her chest X-ray on Thursday, they’re not certain it is a current fungal infection, as it could be an artifact (or something left behind, like a scar when you get cut) from a past infection. For example, someone who has had pneumonia in the past will usually have some kind of finding on an X-ray that shows that they had a lung infection in the past. I’ve had pneumonia twice and it always shows up on an X-ray.
I apologize for the back-and-forth of all this information but in reality this blog is a glimpse into the life of one little girl and one huge family with leukemia
and this frustrating back-and-forth is how it goes daily. Unfortunately the doctors cannot see inside of her body and say THIS is what’s going on without doing something invasive like a biopsy or another test like a CT scan, both of which have their own set of risks. Right now, they can see a little girl who has responded well and very quickly to her treatments, and who has shown no other signs of current infection. So her Resident said that they will mostly likely send her home and then do a follow-up chest X-ray to check on the spot on her lungs in the near future.
God continues to show His kindness to Emily! He brought her a special nurse last night, Angela, who has two girls and totally gets Frozen! She even sat down and sang one of the songs along with Emily and the movie! Grammie got a chance to watch three(!) Super Why movies and an entire Frozen movie while Chrissie went home for several hours last night to spend time at home.
Please, as you are already doing(!), keep praying for Emily and Chrissie – and Emily’s doctors – and brothers and sister – and, of course, pray for Jason who has totally carried the home front organization during this hospital stay – from taking care of a very sick Sophie on Thursday to rearranging – very creatively, I might add – his schedule and life to take over while Chrissie is in the hospital with Emily.