Lip gloss always makes us feel better —

Emily asked Chrissie for some lip gloss!

Emily asked Chrissie for some lip gloss!

So, if you were expecting, as we were, that the next blog would be about Emily’s end-of-chemo celebration party or about how her no-longer-permanent port was removed today, then Stitch has had a bump in the road that has thrown everyone for a loop. She is, as I type this, on a bed in the ER at U. C. Davis.

This was Emily when I/Grammie first got to the ER.

This was Emily when I/Grammie first got to the ER.

Emily went in this morning to have her port removed. Yea!!! That went well – and then she went to the Infusion Room to get her monthly IV Ig infusion, which helps her immune system. All went well with that and then, as they were getting ready to flush the line and unhook her, she started to shake and say she was cold, her blood pressure shot down to 84/59, her heart rate was in the 170’s and her temp was 102.5. They thought it might possibly be a reaction to the IgG infusion but then a doctor came in and said no, we’ve seen this before – as in the couple of times before when she’d been septic. Sepsis is basically an infection that gets into your blood stream. It can overwhelm your body quickly and is a medical emergency. Emily and Chrissie were taken in an ambulance across the street to the ER.

After a couple of boluses of IV fluids and starting an antibiotic, her temp and heart rate have come down and her blood pressure has gone up. The diagnosis is still uncertain but either a reaction or sepsis seem to still be the two choices. Mostly because her symptoms came on so suddenly.

Gaby had to feed Emily her food because Emily has an iV board on each arm to keep her from bending them. Now that her port I'd gone, she has to have iV sticks - but she's a trooper.

Gaby had to feed Emily her food because Emily has an iV board on each arm to keep her from bending them. Now that her port I’d gone, she has to have iV sticks – but she’s a trooper.

Auntie Gaby got here about 9:00 pm and brought food! Emily ate a little and Chrissie and Grammie ate more! Emily is sleepy. We are waiting to get admitted to the Peds floor but the hospital is busy tonight and we don’t know when that will happen. Will have to fill everyone in when we know more tomorrow. In the meantime, please – we didn’t think we’d have to be doing this again – pray for Emily and Chrissie. And pray for Jason, who is home with the other four kids, one of whom – Sophie – has been sick all day. (Emily wouldn’t have caught this from Sophie – Emily’s symptoms came on too suddenly.).

Again, thank you for being there for this family —

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5 responses to “Lip gloss always makes us feel better —

  1. I’m so sorry! This must be so discouraging. We are just praying for this little lady and her family.
    Love in Jesus,
    Ashley Kelso

  2. So much love and support coming your way from Chico!

    • Thank you both – we so much appreciate your prayers. It’s like having a big blanket of “family” to fall into when you really need it.

  3. Terra Turner Dartu

    Keeping everyone in our thoughts shes come so far and she is such a fighter I know in my heart she’s going to get through this too. Hang in there stay strong just a little longer the end is near and you will finally get to take home your precious little girl.

  4. Pingback: A little update after a long break | emilyannelove

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