Photos & Videos Galore

I have a backlog of pictures and short video clips I’ve been wanting to share from the last month, so I’m going to squeeze them all into this post. I’m sorry in advance if it takes a while to load on your computer.

Emily has been doing really well. Her daily chemo has been bumped back up to 100% dosage after dropping it to 50% in May, and her counts seem to be holding at a good level. The monthly IGG transfusions she gets are nothing short of miraculous. Her siblings have all been sick over the past few months with a stomach bug and this yucky high fever + aches + cough virus, but Emily hasn’t caught anything! What a difference from before the transfusions when she got sick simply by breathing.

Emily’s walking is unbalanced and ungainly, and while she doesn’t let that stop her most of the time, quite often her legs get tired and she wants to be carried. It’s been seven weeks since her cast was removed, and the pain and gimpiness could be that her leg is still healing, but realistically I think it’s just something we’ll deal with until she’s done receiving Vincristine next Summer.

The week of Pentamadine, Vincristine, Methotrexate, spinal tap, & steroids each month are still a bit rough, but I think we’ve all grown accustomed to the routine. And each Wednesday, after Emily receives her bolus of oral Methotrexate on Tuesday night, she wakes up pukey and ill. But it passes quickly. It’s almost hard to remember what life was like at this time last year! Cancer is always in the back of my mind, but most days I don’t consciously think about it.

Onto the pictures!

Off to SIBS Camp!

Off to SIBS Camp!

Welcoming the boys home from SIBS Camp, which they LOVED!

Welcoming the boys home from SIBS Camp, which they LOVED!

Welcome home boys (with some friends)

Welcome home boys (with some friends)

So Emily came up with her own way of swinging. Every time we walk out the front door she has to take a swing or two.

Jason brought his work home a couple weeks ago, and the girls were absolutely delighted to have him as an audience!

What do you mean you can't concentrate?

What do you mean you can’t concentrate?

Sophia eventually left him alone. Emily was a bit more stubborn.

Sophia eventually left him alone. Emily was a bit more stubborn.

Speaking of stubborn …

She doesn't care who sees her throwing a fit.

She doesn’t care who sees her throwing a fit.

The boys were invited to a soccer game at Raley Field courtesy of the UC Davis Hospital and the Children’s Miracle Network. After watching the professional Sacramento team play the San Jose Earthquakes, the boys got to usher two Professional International teams onto the field. They’re the three on the far right.

Norway vs. Mexico at Raley Field

Norway vs. Mexico at Raley Field

Last week my parents surprised the kids and I with a trip to Pier 39 in San Francisco, complete with a train ride. We all had so much fun!

Waiting for the train

Waiting for the train


On the wharf

On the wharf


Emily wasn't hesitant to touch the sea creatures at all!

Emily wasn’t hesitant to touch the sea creatures at all!


When she didn't get what she wanted, she threw a silent protest. Even the people walking by had to laugh.

When she didn’t get what she wanted, she threw a silent protest. Even the people walking by had to laugh.

Last, I wanted to share with you our view when we’re in the Pediatric Infusion Center in the UC Davis Cancer Center. It’s really quite peaceful.

View from our chair in the Infusion Room

View from our chair in the Infusion Room

When the new Infusion Center was built last Fall, donors contributed by buying Infusion Chairs for the patients. In return, they could have their name on the wall. The Children’s Miracle Network donated a chair in Emily’s name, so now her name is on the wall.

The Love Chair

The Love Chair

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2 responses to “Photos & Videos Galore

  1. Glad to hear things are chugging along! Olivia does the SAME thing, with the not walking great and wanting to be a held a ton. It’s a fight to get her to walk from the driveway to the front door 😉 And the fits too. Our kiddos have been through a lot, it’s a good thing they are fighters! Emily looks SO SO SO adorable!

  2. Pingback: Costco and the Children’s Miracle Network | emilyannelove

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