Back after a 2-week hiatus

Initially granted a one-week break due to her low ANC (absolute neutrophil count), Emily’s treatment was postponed for a second week when her ANC did not go up. After a two-week hiatus, her ANC has dramatically improved (up to 2,200) and we are beginning to see positive signs of her body recovering both from her chemotherapy and from the Leukemia in general.

During the break, we have focused on improving Emily’s food intake. Battling both nausea and diarrhea, Emily’s nutrition has been declining and in order to avoid the placement of a nasal feeding tube, the family has tried making mealtime fun for Emily. She seems most likely to eat when other people are eating with her and even better if she can eat off of your plate! Her interest in food is still going back and forth but so far, the doctors have not ordered the feeding tube and we hope it stays that way.

Standing tall with sister Sophia!

One of the initial indicators of Emily’s illness was her refusal to walk and her general malaise. We have seen Emily’s playful spirit steadily improving since her treatment began and the past two weeks have brought significant milestones in Emily’s mobility. She has gone from crawling, to standing with assistance, and finally to walking on her own for short distances! Check out the video below for a clip of Emily taking some of her first steps on her own in over four months!

Along with the return of her strength and spirit has come a great enthusiasm for playtime. Emily loves to swing in the front yard and to ride around the block in the family’s pedal car. At Ethan’s Little League playoff game this past weekend, she was goofy and silly in true Stitch fashion – cheering on her brother and playing pirates with William. Last weekend, Emily and sister Sophia celebrated Mother’s Day with the girls by going on a garden walk through Sacramento’s Fab 40’s neighborhood.

Emily loves Auntie Danielle

Mommas and their babies

A Mother’s Day Tea Party

Christina shows Emily & Sophia the flowers

The Mommas

Mother’s Day Garden Walk

Some of the recent pictures show another improvement in Emily’s condition – a decline in the puffiness around her face and body! Processing the chemotherapy is tough work for Emily’s liver and has caused a backup of fluids in her body. Shortly after her treatment began, Emily became swollen and puffy, most notably in her face, but we are finally seeing evidence that her liver is functioning properly again as our familiar little Stitch returns!

Pirate William and the Fair Maiden!

With her ANC back up, Emily will begin her next four-week round of treatment tomorrow. For the next two weeks, she will be at the infusion room four days a week for chemotherapy. Then two weeks of just one-day-a-week treatments. From there, the doctors will plan out the next phase depending on how her blood responds.

Sitting around with Cousin Joah

Please join us in praise for the improvements in Emily’s spirits, mobility, and physical well-being. Please keep praying for an increased appetite and an overall improvement in her blood work, as evidence that the treatment is working to fight the Leukemia in her body. 

There’s our playful Stitch!

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8 responses to “Back after a 2-week hiatus

  1. Such a great update. So good to see her walking and playing. I will continue in prayer as treatments begin again. ~Cheryl~

  2. What an encouraging report! Emily is so very precious. We continue to pray for her complete healing and God’s continued presence in your daily lives. CCTulare

  3. auntie plum and emilyannelove’s family, no doubt i have been thinking about you and wondering how emily was doing. this report is just wonderful! and yes, emily’s face is losing it’s puffiness. it is just wonderful that so many family members live in the same area to love on the love family and children and to share celebrations together. family is the greatest support group and you are very blessed. i used to live in Quincy, CA so i know your area well. i will keep little emilyannelove in my prayers and i am posting an update of her and her progress on my blog. God bless all of you and bring you peace and comfort – Cyndi, Lakeside, MT http://advocateofhope.wordpress.com

  4. auntie plum and emilyannelove’s family, it is good to read such a positive report! in such a rigorous treatment there are times we all need rest! i pray that the rest the family experienced on their two week hiatus was restorative. it is wonderful to have so many family members living nearby. there is nothing like a solid family support foundation in such trying times! i loved the photos! emily is losing her puffiness, an answer to prayer. i used to live in Quincy, CA so i know Sacto well. i am posting an update of little emilyannelove on my blog; she is such a dear! Blessings to you and all of your family, Cyndi, Lakeside, MT, http://advocateofhope.wordpress.com

  5. Praising God with you!!!!!!!! So exciting she is walking again :). It is so hard to see all the difficulties but it is even more so a celebration when you get to watch them overcome each one! Emily is so special because your family has more to celebrate with her.

    We may be in the infusion room this week if they let us go home tomorrow and wait for home health to get her infusions set up instead of waiting out that in the hospital. I’d very much like to go home tomorrow and would very much like to see Chrissie and Emily in the infusion room instead!

    • I’m so glad you got to go home! We’ll be in the Infusion Room tomorrow and Friday mornings. It would make the time much more fun if you two are there too 🙂

  6. Praising God with you!!!!! It is so hard to see all the challenges but it is even more special to watch them overcome each one. Emily is special because your family has more to celebrate with her!

    We might see Chrissie and Emily in the infusion room this week if they let us go home while we wait for home health to set up our iv pump and supplies. Mommy and Livy would very much like to go home tomorrow and visit in the infusion room instead! 😉

  7. Yay Yay Yay….

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